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Thread: new
member | Forum: General Discussion | Posted by: breezysmom |
Date: September 15th, 2004 10:30 PM
He has also had us using Premarin cream (estrogen) in her nose--this
is supposed to help thicken the membranes in the nose and elsewhere
so that the blood vessels aren't so close to the surface. This
is what is supposed to happen naturally during puberty which
is supposed to be why things get better with age. Again, this
seems to work some???
Thread:
New Product on the Market | Forum: General Discussion | Posted
by: breezysmom | Date: October 1st, 2004 11:06 AM
Hi Janet,
I actually got this product a few weeks ago (the same day
we got our diagnosis) and have tried both the Nosebleed and
the topical. It works great on cuts and scrapes. It also works
quickly on low nosebleeds, but be sure to leave the applicator
(Q-tip works great too) in the nose while pinching for 15
seconds and repeat treatment several times if necessary. Also
know that it burns in the nose, but Breanna said she can survive
that if it means she can get back to life quicker!
Our Dr
said that the two products are exactly the same only the nosebleed
one comes with the applicator and to save unused portion to
lower cost. I have also heard that they have been using the
exact same stuff on horses for many years and you can get
the horse brand in large quantities at feed stores for a fraction
of the cost, but I haven't checked on that yet.
Hope this
helps!
Thread:
Bloody Nose | Forum: General Discussion | Posted by: Aaron
Woolhiser | Date: September 9th, 2004 06:09 PM
Alicia had nosebleeds that went on and on. I think she had
a nosebleed for 17 days straight. We took her into the hospital
after a day of solid running and yes it went down her throat
and puked up black old blood. Very disgusting!! Then she wouldn't
eat either because she of course didn't feel like eating.
Most of the time the Ear Nose Throat specialist would come
in and pack her nose, but usually it would soak thru it and
just start gushing when they took the packing out after 5
days or so. Doses and doses of amicar and nova 7, but usually
it would just stop on its own after trying everything and
giving her blood transfusions. But it felt like we were just
putting blood in to have it flow out her nose! Very discouraging.
We never did give her platelets, but we thought about it,
a lot.
Thread:
Hematoma's | Forum: General Discussion | Posted by: Elise
V | Date: September 15th, 2005 02:56 PM
Hi, Eliza is in the clinic--to make a long story short, she
was transfused Tuesday with platelets and factor for a 2 day
nosebleed (controlled only with a clamp on her nose) I got
sick of it and had her treated-she busted open last night--4am--we
pinched , put the clamp on and I sent her to school--I called
the clinic and they suggested another dose of novo 7-which
she just had. (it doesn't bleed if her nose is clamped, but
it does when it is removed) anyway my nurse explained to me
that the donor platelets are different ages--some are old,
some are newer depending on when the donor made them--drawn
off at the same time-do the newer ones work better? probably--so
there is a mix in the bag. I was told of a product called
surigifoam--( cannot get floseal in the hospital anymore)
apparently it is an equivalent, but we didn't use it. Hope
to get some sleep tonight.
Thread:
Nasal Spray with nosebleed | Forum: General Discussion | Posted
by: Tami | Date: November 9th, 2005 01:34 PM
Hi everyone,
Has anyone used over-the-counter Anefrin nasal spray with
a nosebleed?
Quinn
had a little accident on Monday night. He fell in the kitchen
and as he fell he pulled a kitchen chair down on top of him.
He got huge hematoma on his forehead and a pretty bad nose
bleed (the worst we have had so far). We applied ice and pressure
immediately and Amicar. He went to bed that night and kept
bleeding, so he took him to Akron Children's Hospital yesterday.
They did a facial x-ray and gave him one dose of Novo7. He
fought both tooth and nail and all of the trauma caused his
nose bleed to get worse. We left there yesterday afternoon
and he was still bleeding.
The doctor
recomended trying the Anefrin spray. It has seemed to work
a little, his nosebleed is reduced to a drizzle. We are giving
it to him every 12 hours along with Amicar every 6. I am worried
that when it wears off it will have an opposite affect. It
restricts the blood vessels so the bleed lessens. But I have
used nasal spray with a cold and it restricts the vessels
and opens the nasal passage, but when it wears off it seems
like my nose is 10 time more stuffed up. Just wondering if
this is a smart thing to be using or if it will make the situation
worse in the long run?
Thanks,
Tami
Thread:
Nasal Spray with nosebleed | Forum: General Discussion | Posted
by: Missy Z. | Date: November 10th, 2005 09:52 AM
Peter uses Anefrin when he has mild nosebleeds and it seems
to work pretty well. When he has a "gusher" it doesn't
work at all.
Last night
he was up most of the night trying to control a nosebleed
and got sick to his stomach once because he swallowed some
blood while he was sleeping. The thing that has worked every
time for him lately is a "seal-on" nasal sponge
(can get over the counter - made by m-doc - definition: expandable
PVA sponge impregnated with micro-dispersed oxidized cellulose)
which we cover with bacitracin (so it slides in easier). We
then put topical thrombin up his nose with the applicator
that comes with the prescription kit. The topical thrombin
expands the sponge and seems to stop the bleeding immediately.
We usually leave the sponge in for 6 - 12 hours (24 recommended).
Peter then takes Amicar for a day or two and all is well.
Topical
thrombin has been the key to controlling Peter's nosebleeds
since it was prescribed to us last winter. It has been wonderful
to be able to take care of the nosebleeds on our own without
having to go to the ER or doctor's office.
I hope
Quinn feels better soon.
Missy
Z.
Thread:
Novo 7 | Forum: General Discussion | Posted by: Missy Z. |
Date: March 14th, 2005 08:30 PM
This past
weekend I brought my son (Peter - 12yrs old) to our local
emergency room because of a prolonged nosebleed we couldn't
seem to get control of. We have been very lucky for the past
5 years or so in that we have been able to control his nosebleeds
with pressure. The emergency room packed it and told us to
moisten the packing with neo-synephrine every few hours. That
didn't work (no real surprise) and the next afternoon we were
on our way to the emergency room about an hour and a half
away at the hospital where he was diagnosed. We met a wonderful
hematologist (new to the practice) who wanted to give Peter
Novo 7. Unbelievably his nosebleed stopped while we were there
(??) and we didn't need the Novo 7. We were sent off with
Amicar and topical thrombin (a kit of a liquid and powder
that you mix together and put in nose with packing to help
stop nosebleed) but were never told it was an option to keep
Novo 7 with us to bring to a closer ER if needed.
Thread:
Joint bleed | Forum: General Discussion | Posted by: Chris
| Date: August 8th, 2005 11:47 PM
Dan's doing pretty good. He's glad it's still summer even
though it's been pretty hot.
He did have a pretty good nose bleed last week that lasted
for about 2 days. He finally tried a product that he got from
the hospital Social Worker. It's called Urgent QR or Nosebleed
QR. He first tried the powder and it slowed down his bleed.
Then he used the liquid and it did the trick! Their phone
# is 800 722 7559 or website is www.Biolife.com. I understand
that it's available OTC but haven't tried to locate it yet.
The flyer talks about free samples. Has anyone heard of this
product??
How's everyone else doing?? Hope it's a good summer for you.
Thread:
Nasal Spray with nosebleed | Forum: General Discussion | Posted
by: jmlee | Date: November 9th, 2005 02:29 PM
Hi Tami,
Sorry to hear about Quinn's mishap. Anyway, I have found QR
Nosebleed, as Elise mentioned, very helpful lately. Check
out the website, try and get some and give it a try.
I'm really surprised that they let you take Quinn home from
the hospital while he was still bleeding?!?!? Did they check
his hemoglobin? You may want to keep an eye on that so he
doesn't get anemic.
I don't know what Anefrin is but it sounds like it's similar
to Otrivin which our ENT told us not to use much either because
of the same reason you mentioned. I have personally never
used nasal sprays with my kids.
Let us know how Quinn fares.
Janet
Thread:
Nasal Spray with nosebleed | Forum: General Discussion | Posted
by: Helen Smith | Date: November 9th, 2005 03:39 PM
Tami,
We were told to use Afrin or a similar product whenever Julia
has a nosebleed but we were told to make sure we gave it to
her every 10 hours instead of 12 so that the medicine didn't
wear off and let the vessels expand again. Also we always
spray some nasal saline in her nose about 20 minutes after
the Afrin so that we can help keep her nose moist. Then we
coat the nostrils with Vaseline.
I know
this is controversial but it works for us and we do this as
a last resort. We have a dear friend who is an exceptional
ENT and he "very gently" does a chemical cauterization.
We've only had to do it 3 times and each time has been successful.
We've not tried the QR yet, I would definitely try that next
time before doing the cauterization. Also, you do have to
consider the patient. If Quinn fights it like you mentioned
than sometimes the treatment can do more damage than good.
We had to make that call several times when Julia was a baby!
Member
Posts:
85
Registered: Jun 2004 Posted November 10th, 2005 01:25 PM IP
Can anyone give me some ideas on how long you all let your
nose or child's nose bleed/ooze before taking further measures
to stop it?
We are
just wondering if Quinn is on the mend and we just need to
give it time, or if we should be doing more. He is acting
fine and running around playing, but his nose is still oozing
(requiring a wipe about every 1/2 hour). It has been three
days since the incedent that caused it and he had 1 dose of
Novo7 two days ago. He has been on Amicar since it started.
He really won't allow us to do much icing or anything, he
fights too much and we are afraid that by getting so upset,
he will breakup the clotting he has been able to do.
Thanks!
Tami
Helen
Smith
Administrator
Posts:
63
Registered: Mar 2004 Posted November 10th, 2005 04:09 PM IP
Tami, When Julia was Quinn's age and in the same situation
with just a light drizzle but acting fine otherwise we would
just ride it out. Alan and I feel like sometimes being conservative
and letting the little bleeds resolve themselves is better
for the child than putting them through the added trauma of
treatment. Save the trauma for the big stuff.
That's
just our personal approach. Others are very proactive and
treat every bleed aggressively which is fine too. I guess
it all depends on each individual and each individual bleed.
Good luck!
jmlee
Member
Posts:
105
Registered: Mar 2004 Posted November 10th, 2005 05:38 PM IP
Hi Tami,
I understand the fear of upsetting Quinn and making the bleed
worse. To me, wiping once every 1/2 hour for the past 3 days
amounts to quite a bit of blood loss. I'm glad to hear that
he is acting fine but you do need to think about his hemoglobin
dropping further.
I am the type that doesn't let it go on. With my kids, I don't
let it go on. But having said that, they don't usually "ooze".
It's either a full-blown nosebleed that we need to treat or
they don't bleed at all. When they were little, there were
a few minor bleeds that we pinched off. I didn't really let
the oozing go on. But like Helen said, every child is different,
every bleed is different and every family and their approach
is different. That's just me.
As for the Novo7, you might find it more effective if you
had given more than one dose. Remember that it only lasts
in the system for 2 hours. Standard therapy (according to
my hematologists) is at least 3 doses (treatment over 6 hours).
That might do the trick for the oozing. In any case, I would
really bring him in to check his CBC and like I said in the
other message, his ferratin level as well.
Keep us posted! Good luck! (I know how frustrating and worrisome
it can be!)
Janet
JaniceL
Member
Posts:
33
Registered: Mar 2004 Posted November 10th, 2005 06:33 PM IP
I just thought I would add this to the post.
I don't
know about when I was a child because I can't really remember
much about nosebleeds when I was a child but... now, whenever
I get a nosebleed that's really bad I usually can't stop it
with pressure but it really doesn't look like I have a nosebleed
if you were to look at me.
But the
fact of the matter is that the bleed is so far back in the
sinus that the blood is going down the back of my throat.
I remember
going to the hospital once to get my nose packed and the ER
Dr looked at me and almost laughed when he saw a few drops
of blood on the tissue I was using. I told him that blood
clots were going down my throat and when he looked, and I
coughed up some blood he realized that I wasn't crazy.
I just
thought I would add this because when it seems like you see
everything isn't always the case with nosebleeds.
jmlee
Member
Posts:
105
Registered: Mar 2004 Posted November 10th, 2005 07:45 PM IP
That's a great point, Janice because YES, the blood can certainly
go down the back of the throat. AND it doesn't even need to
be a "back" bleed that is further in the nose.
Tami - I'm pretty sure that Quinn isn't bleeding down the
back because he would've thrown it up by now after 3 days.
The stomach cannot tolerate blood and it comes back up pretty
soon. However, the point that Janice is making is an important
one because with nosebleeds - especially more serious ones
- there is bound to be some going down the throat. What I
have come to do is look at the back of my kids throat with
a flashlight when they are having a nosebleed because you
can actually see if it is dripping back there. And when Quinn
is older, he'll also be able to TELL you if he feels it going
down his throat (or if he feels blood clots there) and also
get used to asking him if his stomach hurts - blood upsets
the stomach and he would have a tummy ache.
All the best!
Janet
Tami
Member
Posts:
85
Registered: Jun 2004 Posted November 11th, 2005 08:38 AM IP
Thank you all for your insights! Here's what happened last
night. I was getting dinner ready and he started getting really
fussy. He just walked around the house wining and crying and
making this little coughing noise. He wouldn't play with play-dough
(his favorite) or let me hold him. He was miserable. Then
two huge clots came out of his nose (I suspect some went down
his throat as well because of the coughing)! Then his nose
started running mostly clear with just a little bit of blood.
He was rubbing his head like he had a headache or earache.
So I put him on the couch with a movie and gave him some Tylenol.
He started to perk up within about an hour. I put vaseline
in his nose when I put him to bed and he woke up perfectly
fine this morning. I am giving him some extra iron, because
I am concerned about that, but since he seems fine otherwise,
I don't think we are going to take him in again.
Janet,
I agree, I don't think he swallowed too much because he hasn't
thown-up and his poops are not really dark (yet).
Thank
you all so much for helping me through this one! This was
our first major nosebleed--and I fear this was not even that
bad compared to what some of you guys have described--so there
may be worse to come. But I am learning with each bleed so
I hope I will be better prepared next time.
Take care
All!
Tami
Elise
V.
Unregistered
Posts:
Registered: Posted November 12th, 2005 09:49 AM IP
Hi Tami--I am glad Quinn's nosebleed has resolved. My hematologist
doesn't like prolonged oozing--even a thimble full of blood
loss per day adds up (I have learned the hard way). Anemia
and depleted iron stores can make the next bleed even more
of a life threatening episode. Quinn is small enough that
even a little blood loss over time adds up. It is such a learning
experience. Did you ever get Quinn's labs drawn?
Missy
Z.
Unregistered
Posts:
Registered: Posted November 13th, 2005 11:41 AM IP
Tami:
Peter just finished (hopefully) a nosebleed that has gone
on since Wednesday night. The last blood we saw was last night
(Saturday night).
He woke
up Wed. night with the nosebleed and ended up throwing up
- while he was sleeping he swallowed blood. We packed it Thurs.
A.M. (topical thrombin & nasal sponge). Removed sponge
Thurs. eve, woke up during night bleeding, used pressure,
re-packed Fri. AM, removed Fri. eve, OK to go to swim meet
Saturday (oozing pink) and started to re-bleed Sat. eve -
finally stopped with pressure (thank goodness - all out of
thrombin). He also feels much better when he gets the big
clots out - but we try to leave them in as long as tolerable
so as to not re-start the bleed.
The feeling
of relief when the nosebleed finally stops is amazing - for
me as Peter's mom but especially for Peter. I can see a huge
weight lifted off his shoulders - he can resume his life.
I'm trying to get him to spend some time reading your entries
-I think it would be good for him to actually see someone
else is going through the same thing as he is. I can't even
describe how much this message board means to me!
Take care
everyone -
Missy
Z.
gtgirl
Member
Posts:
122
Registered: Feb 2005 Posted November 14th, 2005 09:12 AM IP
I woke up w/a nosebleed Sunday morning-yuck! My b/f Randy
went and got the QR which was our first experience using it.
I am not sure if I swabbed my nose right? I did end up sneezing
three times. That warmth stinging feeling-it uncomfortable-but
tolerable. I ended up bleeding again in the evening and used
another QR, but that didn't seem to work? I am not sure if
I didn't put enough powder on the applicator or if the bleed
was arterial? This nosebleed was the first one I have had
in awhile that oozed frontwards. I took two amicar after using
QR and went to bed. My nosebleed is finished!
I don't
want to give up on QR, but I will have HHS ship me more than
one box-geez.
Helen-do
you use Avitene Flour for nosebleeds?
Jyll
Helen
Smith
Administrator
Posts:
63
Registered: Mar 2004 Posted November 14th, 2005 10:48 AM IP
-New post-
Jyll,
We do use Avitene flour with nosebleeds. I usually take a
small piece of gauze and coat it with vasoline to give the
flour something to stick to and then put a pinch of the flour
on it before packing the nose. You have to be careful about
sniffing hard because Julia has swallowed the flour after
a hard sniff before. The Avitene comes in a paper-like form
also but it's too hard to try to put that in the nose. It's
firm like thick construction paper.
The Avitene
flour and/or sheet can be used for lip bleeds and to pack
into wounds. We've had great success with it so far.
Glad to
hear your nosebleed stopped.
Helen
